The weight gain I experienced after starting Trikafta caught me off guard and led to disordered eating patterns I’m now learning to heal from.

In December 2019, I started taking Trikafta. I had always taken advantage of new cystic fibrosis medicines and therapies that became available but always hoped for something a little more than ...

I was diagnosed with cystic fibrosis at 47, after decades of living with chronic symptoms. While the diagnosis was a turning point, it didn’t change who I am.

The first few years after my emergency lung transplant were a whirlwind of unexpected challenges. Yet through it all, I remain deeply grateful for the precious time I've been given with my family and ...

BETHESDA, Md. (September, 24, 2025) — Today, the Cystic Fibrosis Foundation announced that Adela Skenderasi, CFA, will join the organization as its next Chief Investment Officer (CIO) on October 13, ...

Growing up in an abusive environment, it was hard to speak up about the health issues I was experiencing. And even when I did, my symptoms were often dismissed by doctors. It wasn’t until my foster ...

Caring for anyone with a long-term disease — especially if that person is your child — is stressful. Parents of children with cystic fibrosis are more likely to experience anxiety, depression, or both ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

Pain is a common issue for many people with cystic fibrosis. People with CF can experience a range of different types of pain from CF. Your CF care team can work with you to develop a plan to decrease ...

This story begins on May 1, 2024, just a week and a half after we welcomed our sweet Bastian into the world. We were still basking in the newborn glow — learning his sounds, his rhythm, the way he fit ...