The weight gain I experienced after starting Trikafta caught me off guard and led to disordered eating patterns I’m now learning to heal from.

I was diagnosed with cystic fibrosis at 47, after decades of living with chronic symptoms. While the diagnosis was a turning point, it didn’t change who I am.

BETHESDA, Md. (September, 24, 2025) — Today, the Cystic Fibrosis Foundation announced that Adela Skenderasi, CFA, will join the organization as its next Chief Investment Officer (CIO) on October 13, ...

Growing up in an abusive environment, it was hard to speak up about the health issues I was experiencing. And even when I did, my symptoms were often dismissed by doctors. It wasn’t until my foster ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

“He who does not know how to look back to where he came from will never get to his destination.” — Dr. José Rizal I was a 19-year-old Filipino American with cystic fibrosis when I recognized my duty ...

Our story begins in October 2023. As a well-seasoned mom, I gave birth to my third child and finally felt all the love, joy, and excitement to have my baby in my arms. What I didn’t know at the time ...

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS. WASHINGTON, D.C. (March 6, 2025) — ...

When I began my journey to earn my Doctor of Pharmacy degree, I knew the road ahead would be challenging. In fact, it was so challenging that I often sat there worrying and anxiously crying about ...