The weight gain I experienced after starting Trikafta caught me off guard and led to disordered eating patterns I’m now learning to heal from.

In December 2019, I started taking Trikafta. I had always taken advantage of new cystic fibrosis medicines and therapies that became available but always hoped for something a little more than ...

I was diagnosed with cystic fibrosis at 47, after decades of living with chronic symptoms. While the diagnosis was a turning point, it didn’t change who I am.

The first few years after my emergency lung transplant were a whirlwind of unexpected challenges. Yet through it all, I remain deeply grateful for the precious time I've been given with my family and ...

BETHESDA, Md. (September, 24, 2025) — Today, the Cystic Fibrosis Foundation announced that Adela Skenderasi, CFA, will join the organization as its next Chief Investment Officer (CIO) on October 13, ...

Caring for anyone with a long-term disease — especially if that person is your child — is stressful. Parents of children with cystic fibrosis are more likely to experience anxiety, depression, or both ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

Pain is a common issue for many people with cystic fibrosis. People with CF can experience a range of different types of pain from CF. Your CF care team can work with you to develop a plan to decrease ...

This story begins on May 1, 2024, just a week and a half after we welcomed our sweet Bastian into the world. We were still basking in the newborn glow — learning his sounds, his rhythm, the way he fit ...